The Cystic Fibrosis Holiday Fund is a national fund that purports to provide children with Cystic Fibrosis and their families with an opportunity to spend quality time together. The national charity fund provides support and funding towards family holidays, breaks and outings for those with Cystic Fibrosis up to the age of 25.
What is Cystic Fibrosis?
Cystic Fibrosis is an inherited disorder that causes severe damage to the lungs, digestive system and other organs in the body. Cystic Fibrosis is an illness that affects the cells that produce mucus, sweat and digestive juices. Children with Cystic Fibrosis rarely ever get a break from a strenuous daily routine of hours of physiotherapy, more than 50 pills and nebulisers twice daily. All these are essential to maintain the health of people with Cystic Fibrosis. Although these are essential, this does not mean that people do not get sick.
Unfortunately, unpredictable hospitalisations are the norm for people suffering from Cystic Fibrosis. This makes it difficult for parents of children with Cystic Fibrosis to hold down a job, leaving incomes stretched and holidays often impossible to afford. This is where the Cystic Fibrosis Holiday Fund comes in.
What does the Cystic Fibrosis Holiday Fund do?
There is currently no cure for Cystic Fibrosis and life expectancy for most patients is in the thirties. Unfortunately, far too many children are still dying in their teens and twenties. The Cystic Fibrosis Holiday Fund charity allows applicants to enjoy a welcome break from their demanding routines and surroundings. Applications are reviewed by the Cystic Fibrosis Holiday Fund’s Medical Advisory Panel and services are later provided by supporters, donors, bequests and fundraising events for the Cystic Fibrosis Holiday Fund. The holidays provided by the Cystic Fibrosis Holiday Fund allow families to create happy memories while they still can, as well as relieving the mental stress of the daily life of the families and patients with Cystic Fibrosis.